Consumer Companion Guide to the new Australian Dementia Guidelines launch

companion guide

A consumer companion guide entitled “Diagnosis, treatment and care for people with dementia” was launched at Parliament House on November 9, 2016. This resource uses accessible language to provide practical guidance about important aspects of the Clinical Practice Guidelines and Principles of Care for People with Dementia for people living will with dementia.

Australia’s first clinical practice guidelines for people with dementia were released early in 2016 and while guidelines are primarily intended for use by health professionals, they are also valuable for consumers as they provide details regarding the expected level of care. It was therefore important to develop a companion guide for members of the public to complement the Clinical Practice Guidelines and Principles of Care for People with Dementia.

As part of the Activity 13 project, a collaborative working group including five consumer representatives (four care partners and one person with dementia) was formed to determine the aims and desired format of the consumer guide.

“The objective of this project was to develop a companion guide for members of the public to complement the Clinical Practice Guidelines to ensure that the information in the Guidelines is more accessible to those who need it most, regardless of their varied levels of health literacy,” Activity 13 Project Officer, Dr Kate Laver.


The guide includes information about the ten Principles of Dignity of Care, ensuring timely diagnosis, advance care planning, accessing services in the community, rehabilitation services, supporting carers, strategies to manage symptoms, and end-of-life care. It includes links to further information and suggested question prompts to facilitate discussions with health professionals.
This consumer version of the guidelines is a valuable resource that will allow consumers to be fully informed when being investigated or treated for possible or diagnosed dementia. The Consumer Guide is currently available on the CDPC website Consumer Companion Guide, and through Alzheimer’s Australia national and regional offices.

Sally Grosvenor, CDPC Communications Officer