The healthCARE group is committed to advancing evidence-based strategies enhance patient care, foster effective clinician–patient–family communication, and support the wellbeing of people living with illness and their families.
Led by Professor Ilona Juraskova, the Healthcare group is dedicated to improving the quality of healthcare experiences through rigorous research, focused on communication, adjustment to illness, and shared decision-making. Our work aims to bridge gaps between clinicians, patients/families by developing practical, evidence-based resources that enhance communication and support during illness. Our research also empowers patients to make informed decisions which are aligned with their personal values and preferences.
We focus on improving health outcomes and quality of life by addressing psychosocial challenges like psychosexual adjustment and clinician-patient communication. We work to reduce disparities in health literacy, ensuring that all patients, especially those from disadvantaged backgrounds, have the tools to actively engage in their care.
Our interdisciplinary approach involves collaboration with healthcare professionals, research institutions, and policymakers, grounded in partnership with consumers. Together, we create innovative, scalable solutions that enhance healthcare delivery, promote patient/family engagement and improve quality of life. Our vision is to drive meaningful and lasting change in healthcare systems - both locally and globally.
Researchers: Dr Jolyn Hersch (Research Fellow), Professor Ilona Juraskova, Professor Phyllis Butow
This project aims to enhance the cancer patient experience with genomic testing by developing and piloting an innovative consent intervention (CoGenT). Combining a Question Prompt List and Dynamic Consent Platform, the intervention seeks to improve decision-making, clarity, and communication in genomic consent processes.
Researchers: Emily Dewar, Professor Ilona Juraskova, Dr Denise Milicevic, Dr Laura Kirsten
Emily’s project aims to develop and test a group intervention to support family members of people with hoarding disorder. The study seeks to improve coping and teach strategies to support loved ones’ treatment, addressing a critical gap in current hoarding disorder care.
Researchers: Emma Minchin (PhD student), Professor Ilona Juraskova, Dr Laura Kirsten, Dr Rebekah Laidsaar-Powell, Surpana Karpe
Emma’s research explores the complex psychosocial impacts of premature, treatment-induced menopause in women with breast or gynaecological cancer and their partners. Using a multi-phase, qualitative approach, it aims to develop a conceptual model and targeted support resources to improve psychological care for this underserved group.
Researchers: Marina Okamura (PhD student), Professor Ilona Juraskova, Professor Caroline Hunt
Marina’s research explores the mental health experiences and unmet needs of d/Deaf and Hard-of-Hearing adolescents and young adults. It aims to develop evidence-based, culturally sensitive resources to improve mental health care access and communication for d/DHH individuals.
Researchers: Miss Olivia Avery (Masters student), Professor Ilona Juraskova, Dr Laura Kirsten
This qualitative study investigates the emotional, ethical, and systemic impacts of voluntary assisted dying (VAD) on palliative care team members in Australia. Through interviews with nurses, psychologists, and allied health professionals, the research aims to inform policy and practice that better supports staff navigating VAD-related care under current legislation.
For any enquiries, please contact Professor Ilona Juraskova at ilona.juraskova@sydney.edu.au.
