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Transforming the palliative care patient journey using emerging technologies

Human-centred design to improve palliative care outcomes

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Through the immersive virtual reality platform, this project will address the need to harness personalised, technology-enhanced interactive experiences among palliative care patients.

About the project

The COVID-19 crisis provided stark evidence that the ability to maintain health in sustainable yet autonomous ways is crucial for those who are unwell. The crisis highlighted how the needs of people with chronic conditions or those in palliative care were ‘invisible’. These factors reinforce the 2018 National Palliative Care Strategy that stressed the need to harness personalised, technology- enhanced, interactive experiences to improve palliative care outcomes.

Amidst this wider context and drawing on the immersive virtual reality platform, the work in this project brings a lens of human-centred design to medical treatment. One of the effects of this is to provide agency to patients in order to better manage physical symptoms and access a wider range of programs involving mindfulness, wellbeing and connectedness. Similarly, solutions for the treatment of chronic diseases such as cancer and neurological disorders will be informed by the work.

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Publications

Naseem Ahmadpour, Phillip Gough, Melanie Lovell, Philip Austin, Philip Poronnik, Wendy Qi Zhang, Judy Kay, Bob Kummerfeld, Tim Luckett, Martin Brown, Jane L. Phillips, and Meera Agar. 2023. How can HCI support end-of-life care? Critical perspectives on sociotechnical imaginaries for palliative care. In proceedings of the 2023 CHI Conference on Human Factors in Computing Systems, ACM, Article 157. https://doi.org/10.1145/3544549.3585768

Project team

Associate Professor Naseem Ahmadpour, University of Sydney

Dr Phillip Gough, University of Sydney

Professor Philip Poronnik, University of Sydney

Martin Brown, University of Sydney

Professor Judy Kay, University of Sydney

Professor Bob Kummerfeld, University of Sydney

Professor Melanie Lovell, HammondCare

Dr Tim Luckett, IMPACCT Centre

Professor Meera Agar, IMPACCT Centre

Professor Jane Philips, University of Technology Sydney

Dr Phil Austin, Research Fellow and Osteopath