This report captures the perspectives of 40 members of the disability community to the idea of a National Disability Data Asset (NDDA) in Australia.
The NDDA is an ambitious initiative involving federal, state and territory governments that aims to better understand the experiences of people with disability. It intends to do this by linking de-identified data across a range of domains including education, health, justice and employment. Further data collected by communities, researchers and service providers is intended to be linked in later phases.
The Lab’s interviews and workshops identified participants’ hopes that the NDDA will improve the quality and availability of data about people with disability, and that this improved data will be used to create positive change for people with disability.
The clearest single insight to emerge from the research was that participants’ support for the NDDA was dependent on the meaningful involvement of people with disability in the Asset’s design, governance and operation.
The research identifies seven requirements of a successful NDDA:
The report makes three additional suggestions for analysts, researchers and civil society:
Research team: Emma Calgaro, Juliet Bennett, Sheelagh Daniel-Mayes, Leigh-Anne Hepburn, Kimberlee Weatherall, Libby Young Louise Beehag, Amy Tong and Marc Stears
Research partner: NDDA National Project Team